Goodbye Dad

This week I said goodbye to my father. Too soon.

Diagnosed with ALS just 18 months ago, he lived the end of his life with amazing grace, but the last few months were truly terrible. As he lost his ability to move and ultimately to communicate, each goodbye grew more painful. The man I knew as my dad became lost. He wouldn’t – doesn’t—want me to wallow in sadness, and yet I need to honor that time in the journey.

I am, in fact, not sure of what I want to say, or how to say what I feel today, the day we laid him to rest. My thoughts are a jumble of euphemisms – he fought the good fight; he showed courage under fire; he was at peace; he’s in a better place.

As I’ve greeted friends, family and strangers offering condolences this week, I’ve nodded and agreed with heartfelt variations of all of the above. My dad touched so many lives in unique and meaningful ways. I love that people wanted to share their experiences with me. And I love that he was loved by so many people. I will always be grateful for the way that people gave a piece of my dad back to me through their stories, their prayers, their hugs, and just their presence in my life.

This entire experience, diagnosis through death, has left me amazed.

My dad amazed me. For all of his many amazing attributes, my father was never a patient man. But, as ALS stole the abilities to walk, to move, to eat and to drink, he remained calm, unhurried. He found a peace within himself that I had never witnessed. (He would doubtless tell me that it was the spirit of the Lord holding him still, holding him up.) He sincerely found each day a blessing.

His wife Jane amazes me. Married to my dad for 27 years, Jane has been the model of courage and conviction. She honored my father’s wishes to the very end, taking on the responsibility for his care so he could stay in his home. She opened her doors to friends and family at any hour and gave everything she had to make his world better. I’ve come to know her so much better through this experience and am so proud to have her as a stepmother and as my friend.

My brother amazes me. My “little” brother stood taller than his 6’2” in the face of ALS. He never turned his back, or shied away from any need my father had – physical, emotional or otherwise. My dad trusted him more than anyone other than Jane and he more than lived up to that trust. The way he stepped in, and stepped up, constantly inspired me. I’ve always seen the boy in my brother. I now recognize the man and I could not be more proud to call myself his sister.

My dad’s parish family amazes me. At St. Thomas of Villanova, my father found his passion. I told many people this week that he found more joy and fulfillment in his few years of volunteering there than he did in the 30 years of his “career.” His parish was a true gift in his final years, a period I will always think of as the happiest time in his life. They surrounded our family with love and prayer and faith. They took care of little details and kept us fed and transported people and pictures and flowers. They are the definition of community.  What would this have been had we not been carried along by Father Tom and Connie and Leo and all of the STV family?

We took this journey together and, although I come out on the other side saddened, my life will be better for the people I’ve come to know and for the true love I witnessed.

High school graduation


34 thoughts on “Goodbye Dad

  1. Oh….I had only now stopped the flow of tears, and now, here comes THIS, this…sweet, generous flow of thought and heart.. Okay, so the tears will hang around a bit. It’s a good cause.


    • I am so glad you were there with us today. If I had started on my amazement at my friends and family, I would have never stopped typing. Thank you my dear, darling friend. I am honored that you always have my back (and hands, neck and ears too.)


  2. How beautiful Alena. I can tell how much you loved him from your heartfelt words. Praying for all of you. Your tribute made me cry and wish I had known your dad.


  3. Alena- I’m reading this with tears in my eyes, my dear friend. You, too, amaze me with your strength, courage and many talents. It was so great to see you, wish it was under happier circumstances. Love and miss you.


    • I don’t think I will ever be able to tell you how much it meant to see your beautiful face yesterday. And yes, I need a JP fix under much happier circumstances. How about tears of laughter. We’re quite good at that!


  4. oh, Alena, what a wonderful tribute to your dad, and the community that surrounded you both. I’m certain he was amazed every day of his life to have contributed to the creation of the beautiful soul that is you. much love to you and your family, at this time and always.


  5. Alena, I am so sorry for your loss. I’m glad that you were able to experience such grace in the final stages of his journey. I did not know him, but it seems to me that your father could not have helped but be amazed by his beautiful daughter too.


  6. What a beautiful tribute and words Alena! Your father sounds like an exceptional man, and my heart goes out to you and your family, as well as everyone whose life he touched.




  8. Dear Elena, As I told you this week, it was indeed a privilege to walk that sacred journey with your dear father and Jane. Bringing Eucharist to them was a very special time for all of us. I am grateful that God’s plan brought us all together. We will miss him very much, but remember him as we challenge ourselves to live life the way he did. I am so happy that I was able to get to know you and your sweet family and Dustin and Maria. Mary Ann


  9. Oh my. I’m so sorry for your loss, but what a beautiful tribute to your dad. It sounds to me like he touched many people’s lives, and in turn, by sharing these insights and memories of him, you have as well. Peace.


  10. As always Alena, you have captured your emotions in an eloquent and moving voice. Thank you for sharing pictures, stories, and memories of your father. We should all hold our loved ones a little closer and be reminded of the truly important things in this life.


  11. Pingback: live my life trying to be something he would be proud of. | Barbier Family Blog

  12. Pingback: My 2012, A Year of Momentous Change « alenaslife

  13. Pingback: Top Ten Tuesday: Which posts best reflect me? « alenaslife

  14. I knew your father from back in the old Illinois Bell days. I was shocked and sorrowed to hear of his passing. He was always so proud of you and Dustin and credited Karen for being such a great mother. May he be at peace.


I'd love to hear what you think.

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s